This is 36

This is 36

This is 36

Birthdays mean you made it here. You survived the trip. They mean you hung on with your teeth when your arms gave way. But who am I now that illness stole the show?

Today I turn 35 years old.  I am still here.

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Today I turn 35 years old. I am still here.

"Most of what I have accomplished in my life is immeasurable, intangible, and invisible.  But I have fought hard for the unseen things. And I often feel that because you can’t see or measure my accomplishments, that they don’t count.

That I don’t count.  But here I am."

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I am here to be loved

I am here to be loved

"I am here and was given these mountains to climb, not to carry."

What I want you to know

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What I want you to know

"What I want you to know is sick and disabled people don't have to fulfill a definition of worth that excludes them in order for their lives to matter."

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When I say I am "tired"

When I say I am "tired"

"Your disease beseeches you to let go and say goodbye to the person you were before and swallow a grim reality daily.  The loss arrives with no instructions. No shortcuts. No fast forward button."